Learning From Lew
Whole
I said he was not whole But I wonder what I meant. He cannot walk or talk or perform any life skill unassisted, But he can giggle and cry and...
Learning From Lew
How we made a difficult decision; how it worked out
During the years Lew lived at home with us, a g-tube was suggested several times but there was no medical reason so we declined. Lew could eat orally. It took...
Learning From Lew
Homage to Sheila
Sheila was an aide at the Home of the Innocents. She was working that first day when we took Lew from the respite care home to HOTI. That day was...
Learning From Lew
An Open Letter to my friends from your friend whose child has disabilities
Dear Friends: My heart is full of things I want to say to you, my friends, but I have had a difficult time talking to you about them. I have...
Learning From Lew
His Gifts
I have a first-born son Who is severely disabled But he brings great gifts to me. He brings to my life Sweetness. He looks at me. He fully accepts me...
Learning From Lew
I Want: A Poem Prompt
I WANT I WANT I WANT I SEEM TO BE BUT REALLY I AM OH, HOW I WANT………….!! This week, in July of 2009, I found this poem prompt among...
Learning From Lew
Where was God when Lew was declining and dying?
In the Fall of 1997 I found this quote in the book Encountering Evil: live options in theodicy edited by Stephen T. Davis. This is a book I never would...
Learning From Lew
The Poem I Said I Would Never Write
Every mother of a child who is disabled has at least one poem in her about her child, about the smile, the radiance, the beauty, the joy, the gifts, the...
Learning From Lew
First day at The Home of The Innocents
It was the day we took Lew to the Home of the Innocents to stay. It was the worst day of my life – but not for the reasons I...